mystery joint pain and tingling hands and feet

[simonthedog]

hi everyone. about six weeks ago i suddenly started to get pain in my hips. it would start in the afternoon and then progressively get worse into the night, but when i went to sleep it would get better and then i would feel fine the next morning. then it slowly started to move to my knees, elbows, shoulders. neck, and back. now my feet hurt as well. i went to my doctor and he did blood tests. he thought that it might be lyme disease( i live in pennsylvania where this is very prevalant). all of my tests came back normal, but i asked if i could take an antibiotic anyway, just in case it was a false negative result for lyme. he agreed, and i have been taking the antibiotic for about 2 weeks now. i have noticed slight improvement. before the antibiotic i was taking 600mg. of ibuprofen 3 times a day and i was still in pain. now if i keep taking the ibuprofen i feel o.k. the past few days i have been experiencing a tingling/ burning sensation in my hands and feet, and sometimes in weird, random spots on my body. i have also been suffering panic attacks and anxiety, which i am not sure is being caused by whatever i have, or is just my own fear getting the best of me. i also feel dizzy from time to time. i have had a few accupuncture treatments. i feel pretty much the same, though. they tested for rheumatoid factors, cbc, lyme, electrolyte levels, and a few other things. my doctor doesn't think it could be lupus. i am so frustrated and nervous. if anyone has any suggestions, i'd really appreciate it. thanks!
olga

[jackrorabbit]

Check for fibromyalgia. but it doesn't really match with the feeling better in the morning. A neurologist could help you with the burning and tingling or finding the source.

The hips could be a sacroiliac joint dysfunction.
You live in Lyme country many tests give false negatives. Your doc should know this and should treat you on the symptoms any way.....The big tip off is you feel better on antibx....I had been undx'd for 20 yrs, but always felt better after being on Abx for something else. I had the traveling pains and all tests we clear...So I know how frustrated you are.
They are now finding Lyme is the biggest factor in things like Ms and lupus. Get checked for magnasium and potassium levels too, cause Lyme will leach them out of your body. Also check thyroid, if you have had undx'd Lyme for a long time it acn affect that too. Good luck.

[simonthedog]

thanks for responding. i will mention all of your recommendations to my doctor.
olga

i have the same exact thing except the hip thing, but everything else is the same. i woudl love to know what it is, my dr first said pulkled muscles, because it was only in my left arm and then it was in the right, so she said i have tendintits or carpatunnel...its so frusterating, its in my feet to the tingling and i dont know what to do. if you find out anything please get back to me at my e-mail please!!! brandimaxwell@gmail.com
hope this gets better for you!!

[aquila]

Maybe celiac disease.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

[dizzy lizzie]

Have your B12 level tested as deficiency can cause these symptoms and exacerbate them if the cause is elsewhere. It should be at least 400. If not, look for a methylcobalamin B12 supplement in whatever dose your doctor recommends.

I have the same exact pain and I am very worried. All my tests came back negative. The hip thing you described is to a T for me. I have the same issues. I have good and bad days. Today isn't terrible but now my eyes are beginning to behave strangley. They are in so much pain and are very sensitive to light all of a sudden. I am curious to know how you are since your first post so I can maybe determine what I should do next. Send me an email at mary.clark@maine.edu.

Thank you!