Looking for Marfan's specialist

[spanky]

I have tried using Google to find listings for doctors in my area (Houston) that specialize in treating Marfan's Syndrome, supposedly this is where a lot of research on the disorder takes place but I cannot find any listings. None of the hospitals I have called in and asked were very helpful, either.

I'm aware from my research that if I in fact do have Marfan's (my sister is diagnosed with it, and I have observed many symptoms in myself) - I will probably need a specialist who has worked with Marfan patients otherwise I am screwed.

Please help! Can someone refer me to a specialist or direct me to a listing?

[aquila]

Try these people:

Genetic basis of thoracic aortic aneurysms and aortic dissections.

Pannu H, Tran-Fadulu V, Milewicz DM.
Division of Medical Genetics, Department of Internal Medicine, University of Texas Medical School, Houston, USA.

Here you go!

University of Texas at Houston
Contact Kristi L. Baysinger-Morin, RN
Phone 713-500-5774
E-mail Kristi.L.Baysinger@uth.tmc.edu




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